Russian Orthodox Cathedral
706 Hill Street
Mayfield PA 18433
Dates: Thursday, December 22nd and Friday December 23rd
Two Day Event, each day will run 11am to 4 pm
I’m Looking For Your Support:
My name is
Grace Kubus. My appearance as a nine
year old maybe small; but I’m doing what I can to make a large impression with
a huge donation in memory of my sister.
My sister couldn’t be with us today, because of complications with this
birth defect, CDH. She is now among many
CHERUBS in heaven. When the National
American Miss, crowned me as their State Cover Girl, and they asked me to
donate my time for a community event; I felt there was nothing closer to my
heart than my big sister. I’m reaching out to all my family and friends to help
me at my bake sale.
Along with
my bake sale, my mom, Patricia Kubus, author of Amanda Helps Becky Say Farewell
and Amanda Finds Kristy Alone, will be running a book signing event along side
of me to help raise funds as well.
We will
also be have available 50/50 tickets and basket chances.
We Hope To
See You There! Thank You!
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in
approximately 1 in every 2,500 births (1,600 cases in the U.S. each
year). The cause of CDH is not yet known. The diaphragm is formed
in the first trimester of pregnancy and controls the lungs' ability to inhale
and exhale. CDH occurs when the diaphragm fails to form or to close
totally and an opening allows abdominal organs into the chest cavity.
This inhibits lung growth.
Every patient diagnosed with CDH is different.
Survival rates depend on the types and number of organs involved in the
herniation and the amount of lung tissue available. There are many
surgical procedures and complications that may or may not occur with each
individual, including in utero surgery.
Roughly
50% of babies born with CDH do not survive. Of the 50% that do
survive, most will endure long hospital stays, feeding issues, asthma and other
problems. A few of the survivors suffer from severe long-term medical
issues.
CHERUBS
-
The
Association of Congenital
Diaphragmatic
Hernia Research,
Awareness
and Support
CHERUBS is the world's first, oldest, and largest CDH
non-profit organization. We are truly a grassroots organization - CDH
families creating something out of nothing when there was no other CDH group,
information and services in 1995. CHERUBS was created to make sure that
no family endures Congenital Diaphragmatic Hernia without support or accurate
information. Our Board of Directors includes CDH parents, grandparents,
survivors, nurses, doctors and the world's top CDH researchers. CHERUBS is run
solely by volunteers and donations. At CHERUBS, every CDH family has an
opportunity to honor or remember our children while doing good to help others
and work together as a CDH community. No other charity in the world has such a
respected, educated or experienced group of leaders who care so much about the
CDH community.
If Interested In Donating Bake Goods
Please come with your donations during our bake sale
event hours or you can give us a call at home to arrange pickup/drop off at
570.876.2947.
Further information about CHERUBS can be viewed on their
website: www.cdhsupport.org
CHERUBS Mailing Address:
3650 Rogers Rd #290
Wake
Forest, NC 27587
Tel: 919-610-0129
Fax: 815-425-9155
Dawn
Williamson,
President
& Founder
IN MEMORY OF MY SISTER AMANDA
