Friday, December 9, 2011

Bake Sale and Book Signing Event

Location: St. John the Baptist
Russian Orthodox Cathedral
706 Hill Street
Mayfield PA 18433

Dates: Thursday, December 22nd and Friday December 23rd 

Two Day Event, each day will run 11am to 4 pm

I’m Looking For Your Support:

My name is Grace Kubus.  My appearance as a nine year old maybe small; but I’m doing what I can to make a large impression with a huge donation in memory of my sister.  My sister couldn’t be with us today, because of complications with this birth defect, CDH.  She is now among many CHERUBS in heaven.  When the National American Miss, crowned me as their State Cover Girl, and they asked me to donate my time for a community event; I felt there was nothing closer to my heart than my big sister. I’m reaching out to all my family and friends to help me at my bake sale. 
Along with my bake sale, my mom, Patricia Kubus, author of Amanda Helps Becky Say Farewell and Amanda Finds Kristy Alone, will be running a book signing event along side of me to help raise funds as well.
We will also be have available 50/50 tickets and basket chances. 
We Hope To See You There!  Thank You!

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.  
Every patient diagnosed with CDH is different.  Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available.  There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.
Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues. 

CHERUBS -
The Association of Congenital
Diaphragmatic Hernia Research,
Awareness and Support

CHERUBS is the world's first, oldest, and largest CDH non-profit organization.  We are truly a grassroots organization - CDH families creating something out of nothing when there was no other CDH group, information and services in 1995.  CHERUBS was created to make sure that no family endures Congenital Diaphragmatic Hernia without support or accurate information.  Our Board of Directors includes CDH parents, grandparents, survivors, nurses, doctors and the world's top CDH researchers. CHERUBS is run solely by volunteers and donations.  At CHERUBS, every CDH family has an opportunity to honor or remember our children while doing good to help others and work together as a CDH community. No other charity in the world has such a respected, educated or experienced group of leaders who care so much about the CDH community.



If Interested In Donating Bake Goods


Please come with your donations during our bake sale event hours or you can give us a call at home to arrange pickup/drop off at 570.876.2947.

Further information about CHERUBS can be viewed on their website: www.cdhsupport.org
CHERUBS Mailing Address:
3650 Rogers Rd #290
Wake Forest, NC 27587
Tel: 919-610-0129 
Fax: 815-425-9155

Dawn Williamson,
President & Founder
 





IN MEMORY OF MY SISTER AMANDA